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Recommended Links:


National Hereditary Breast Cancer Helpline – a highly recommended website www.breastcancergenetics.co.uk

Useful Guidance from NICE: Draft Updated Version of the National Institute for
Health and Clinical Excellence (NICE) – Familial breast cancer
www.breastcancergenetics.co.uk

www.angelsofhope.org.uk

www.breastcancer.lifetips.com

www.actioncancer.org

Hereditary Breast and Ovarian Cancer Foundation (www.hboc.ca )

www.hystersisters.com

National Cancer Institute – www.cancer.gov  – very good factsheet on BRCA1and2

www.breastcancer.org  
Useful information on guidance for women with gene abnormalities

www.macmillan.org.uk

www.cancerresearchuk.org

www.breastcancercampaign.org

www.cancerfocusni.org

Surveillance

In Northern Ireland we have a High Risk Surveillance Programme.

Go to www.cancerscreening.hscni.net for further information on the programme offered to families deemed as ‘High Risk.’

Recommended Information for High Risk

BRCA information for families carrying the BRCA gene mutation – Belfast Health and Social Care Trust BRCA Clinic. Contact: email: familyhistory@belfasttrust.hscni.net

Royal Marsden – A Beginners Guide to BRCA 1 and 2. http://www.royalmarsden.nhs.uk/SiteCollectionDocuments/patient-information/brca.pdf

Breast Cancer in Families booklet– email: info@breastcancercare.org.uk for your free copy or visit www.breastcancercare.org.uk

Understanding Risk Reducing Breast Surgery – a very informative booklet by Macmillan Cancer Support. Freephone 0808 808 0000 (Mon-Fri 9am-8pm) for your copy or general enquiries to 020 7840 7840.

PDF Information Booklet for BRCA carriers.

Suggested Books

‘I’m Still Standing’  by Wendy Watson -www.imstillstanding.co.uk

‘Designer Genes’ by Emma Hannigan www.emmahannigan.com

‘Singing the Life’  by Elizabeth Bryan

‘Pretty Is What Changes: Impossible Choices, The Breast Cancer Gene, and How I Defied My Destiny’ by Jessica Queller

 

Blogs

www.claireandthegenie.com

www.meandmrbrca1.co.uk

http://www.u.tv/Blogs/Ciara-Priestly

Please feel free to suggest other titles or publications you have found.

 

 

 

FACEBOOK

If you are on FACEBOOK you only have to search for BRCA and you will see lots of groups to join. Below are some examples ‘BRCA Link Ni’  follow:

NHBCH – National Hereditary Breast Cancer Helpline

Bright Pink
Wendy’s Army
BRCA Sisterhood
I’m Still Standing
FORCE
Pink Ribbon


 

 

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